“We wish to thank the AER Foundation’s Small Grants Program for its support and commitment to Fetal Alcohol Spectrum Disorder in Australia”
Seth rang today to talk about buying a brand new car. Its a devastating thing when you have an IQ which tells you that you should have the same things as your next door neighbour but with no way to understand that it takes more than just telling me to make it happen. I cant [...]
I took the dogs for a walk in the afternoon instead of the evening. I found some kids playing football in the park. There were two sets. One was a group of around 15 youngesters i guess between the ages of 10 and 15. The other group consisted of three older teenagers or even twenty-somethings [...]
Feeling a little dis-heartened today. I have put in so many funding applications but we still have not gained funding to continue the rffada after the six months that my company has given me. I rang the Department of Health and Ageing in the hope that they would have funding for us to continue. I said [...]
I got a call the other day from Kirrily (I only remember her name because she sent me an emal afterwards) from the National Australia Day Council. I heard a couple of words before she said “award”, “finalist” and ‘proud’! I am a little blase about awards and achievements and such, but i got off [...]
So I decided to start a blog. I don’t want to write any more books but we are still having heaps of experiences with Seth that I have no idea how to handle appropriately but we give it a go and maybe some will stick and those that don’t might work for someone else. I [...]
The RFFADF is now the RFFADA and The Russell Family Fetal Alcohol Disorders ASSOCIATION has been approved as an incorporated association. The next step is to gain Deductible Gift Recipient Status (DGR) for which I will be applying as soon as I have the econstitution frinalised.
Have a look at this email from Arbias – The RFFADA is getting closer: In partnership with the National Organisation for Fetal Alcohol Spectrum and Related Disorders (NOFASARD) and the Russell Family Fetal Alcohol Disorders Fund, I am pleased to announce the development of Australia’s first Fetal Alcohol Spectrum Disorder (FASD) diagnostic and support service. [...]
Last week was the first conference specifically for FASD ever held in Australia and it was a credit to the organisers – Drug Education Network. There were two speakers from North America and the remainder from Australia including a wonderful presentation by Dr John Whitehall about how even minute amounts of alcohol can harm the [...]
Naltrexone didnt work in helping Seth to stop using marijuana. I think now that the only thing that will work is for him to want to stop more than he wants to keep using. I will leave this now between Seth and Hayley. Seth was playing squash the other day and ended up with a [...]